Tag Archives: rare diseases
Mikey’s Journey: A Boy Defying Odds and Inspiring Compassion
Mikey Senecal, born with CDH and Pfeiffer Syndrome, defies odds and inspires compassion. His story.....Read more
22
Jan
Jan
Lindsey Johnson Edwards: Navigating Life and Empowering Others with CLOVES Syndrome
Lindsey Johnson Edwards uses TikTok to share her journey with CLOVES syndrome, a rare vascular.....Read more
13
Dec
Dec